Unfiltered Stories of the Breast Cancer Fight

Breast cancer is a complex and deeply personal battle, one that’s more than just a diagnosis. For many, it becomes an unexpected shift in their identity, a challenge that compels them to face fears, navigate medical ambiguity, and find strength in the face of uncertainty. Stephanie Alexander and Katrece Nolen, both resilient women from Northern Virginia, shared their individual stories, providing us with a unique insight into the emotional landscape of this journey—marked by struggle yet uplifted by resilience, determination, and the essential support of those around them.

Seeking Answers and Medical Uncertainty

When Stephanie Alexander first received her recommendation for a biopsy, her radiologist’s choice of words struck her. “He never actually said the words ‘breast cancer’… he’s very clinical,” she remembered. This vague language left her in a fog of worry as her mind filled with questions about what might come next. Before she received her diagnosis, Stephanie entered a phase of waiting—spending 24 days between first noticing something was wrong and finally consulting with a medical professional to discuss the next steps. Living in Northern Virginia, she was grateful to have access to a robust network of healthcare providers, a medical necessity not accessible to all women. She’d heard from others who had to drive hours just to see a doctor, adding a physical and emotional toll to an already overwhelming situation.

Despite her proximity to quality care, Stephanie was frustrated with the disheartening lack of guidance from her doctors. “No doctor will actually tell you what to do; they are basically like, here are your options, and it’s what you think you should do,” she shared. As a patient facing an unfamiliar world of medical jargon and choices, Stephanie found herself frustrated by the medical professionals she was counting on to have the answers. The vague replies—”it depends”—were meant to acknowledge every patient’s unique reaction to treatment, but they left her alone navigating unexpected symptoms on her own. Even more challenging was Stephanie’s responsibility to balance transparency with leadership in her professional life. “You have to lead with humanity and compassion… People put folks on a pedestal, but we’re all human,” she said, emphasizing the delicate balance of showing vulnerability while reassuring those she leads. 

Katrece Nolen’s story reflects similar difficulties that many face in navigating the medical system for diagnosis and treatment. After first noticing breast swelling, she underwent a mammogram, which detected only thickening of the skin. Still, her doctor prescribed antibiotics to treat what was assumed to be an infection. But within two weeks, the swelling had worsened significantly, prompting further concern. When her doctor referred her to a breast surgeon, she was told there were no available appointments for months—a delay that felt impossible to accept as her symptoms intensified. Determined to find answers, Katrece sought an appointment with a different doctor, only to run into another barrier: the office required a physical mammogram film rather than the CD she had brought. “I explained all they gave me was the CD, not the film… so they said, ‘well if we don’t have the film, we’ll have to reschedule you,’” she recalls. Rescheduling meant waiting weeks or months, which wasn’t a feasible option with her worsening symptoms. Finally, after persisting, she met with the doctor, who, upon reviewing her records, delivered the news: Katrece likely had inflammatory breast cancer, a rare and aggressive form that begins at Stage 3.

This revelation left Katrece grappling with a daunting reality. “Learning about how it’s rare, aggressive, and that I had little chances of survival was shocking and very disheartening.” But despite her fear, Katrece resolved to fight. With three young children at home, she felt a profound need to persevere not only for herself but for her family. “I had to fight. I had to figure it out and get the best resources possible,” she recalled, a mindset that got her through the rigorous treatments of chemotherapy, surgery, and radiation. She became her own advocate, an “information junkie,” diving deep into research and reaching out to others who had faced similar diagnoses.

Creating a Network of Strength Through Transparency

For both Stephanie and Katrece, openness played a critical role in managing their diagnoses. Stephanie, who chose to share her experience publicly, found that talking about her journey on LinkedIn became an unexpected source of strength. Her transparency brought support and sparked conversations with others who had walked similar paths, creating a network of shared experiences and insight. “There is some subsection of the population dealing with cancer at any given time that you don’t even know about. It’s very silent… spouses, moms, sisters. There are so many people impacted by it, and people don’t talk about it,” she explained. By opening up, Stephanie saw firsthand the importance of breaking this silence, creating space for genuine connection and understanding.

Katrece’s experience echoed this. She also made the decision to be open, which introduced her to resources that proved essential as she moved through treatment. “It was a chain reaction,” she recalled. “Doors opened, and the information accessible to me from people who had the disease or are experts in it made a huge difference.” Alongside these new connections, Katrece had the steadfast support of family members who rallied together, some even traveling from out of state to help her through the hardest moments. Their presence allowed her to take on each step of treatment knowing she was not facing it alone.

Being transparent about their experiences allowed both women to build strong support networks—communities of friends, family, and others who became vital to their journeys. In each conversation, they found understanding and solidarity. Both emphasized that while every breast cancer journey is unique, having people to lean on can make a real difference in facing the many challenges along the way. Their advice for others: reach out, share your story, and build a network you can rely on. In doing so, you open the door to a community ready to support and guide you, building strength together.

Lingering Impact of Breast Cancer’s Emotional Toll

One of the most difficult aspects of breast cancer is its lasting emotional toll.  Stephanie found that after treatment ended, she was constantly bracing herself for the “other shoe to drop.” It took some time before she could fully move forward, held back by the lingering fear of recurrence. This worry is something Katrece knows all too well. She explains that breast cancer doesn’t end with remission—it requires lifelong vigilance. Every follow-up scan and check-up comes with the haunting possibility of a return, and each appointment carries its own set of anxieties. “You have to be monitored for the rest of your life. It’s not just your physical health, it’s also a mental game,” she shares, emphasizing the importance of having a compassionate and consistent care team for support.

Athari BioSciences: Together in the Fight Against Breast Cancer

Katrece and Stephanie’s stories remind us that breast cancer is not an isolated battle but one fought with the collective support of family, friends, experts, and communities. At Athari BioSciences, we believe that every patient deserves better answers, clearer options, and treatments that truly support their lives. This commitment drives our work toward patient-centered innovations in breast cancer treatment.

As part of our ongoing efforts, we’re developing groundbreaking nanoparticle immunotherapy technologies, targeting cancer cells with remarkable precision. These virus-like particles are engineered with tumor-targeting peptides, delivering therapeutic compounds directly to cancer cells while sparing healthy tissue—a design that aims to reduce the often-debilitating side effects of conventional treatments. With these advancements, we’re working toward a future where patients like Stephanie and Katrece face fewer unknowns and can feel empowered in their treatment journey.

In time, we hope that stories of resilience will be matched by stories of breakthrough and recovery—proof of what can be achieved when science and humanity unite in the fight against breast cancer. Every survivor’s journey is unique, each one defined by its own challenges and triumphs. Together, these voices form a powerful reminder that no one should face cancer alone. Through compassion, transparency, and relentless dedication to innovation, we strive to create a world where fewer people will have to.

Rising Above the Pain: The Journey and Resilience of Those Living with Sickle Cell Disease

In a world that often overlooks or doesn’t understand their struggles, those living with sickle cell disease (SCD) are a testament to resilience, strength, and perseverance. SCD is an inherited blood disorder that distorts red blood cells into a crescent or “sickle” shape, leading to debilitating symptoms for those who suffer from the disease.

SCD affects millions worldwide, primarily within the African American/Black communities. Yet, despite its prevalence, globally, SCD is considered a “rare” disease. It also remains stigmatized, neglected, and misunderstood—both by society and by our healthcare system.

A Silent Struggle with SCD symptoms

For many with SCD, life is a constant battle with pain, fatigue, and fear of sudden complications. The pain “crises” that characterize this disease strike without warning and often requiring hospitalization. During my interviews, I spoke with several people living with SCD – their stories are both heartbreaking and inspiring.

Teanika Hoffman has lived with SCD all her life. “When you’re dealing with a very excruciating disease, it really prevents you from living a normal life,” she explained. This pain has resulted in numerous setbacks, academically and professionally, as Teanika has encountered barriers to adequate healthcare. “My care was really terrible, and I almost lost my life,” she revealed, sharing that this isn’t an isolated experience. “Most adult hospitals are not prepared or don’t know how to take care of sickle cell patients.” Unfortunately, many others face similar stories once they leave pediatric care. “Patients have to drive anywhere from an hour to three hours to get care,” Teanika added, highlighting the lack of local, specialized treatment centers.

Teanika’s story matches the experience and resonates with Ivy Bryant, mother to Peyton Clemmons, who has sickle cell disease. Ivy reflected on the emotional and mental challenges navigating her daughter’s diagnosis. “Having someone you can trust, that knows your kiddo is super important when navigating this disease because it can manifest very differently across individuals,” she said. Peyton, who has the SS strain of sickle cell—the most challenging form of the disease—has fortunately had somewhat less severe disease experiences, but Ivy vividly recalled the early uncertainties. “As a first-time mom, you’re getting used to all the different cries… I had to, in the back of my head, figure out if she’s hungry, tired, cranky, teething, or in actual pain.”

Managing Peyton’s condition for Ivy also meant learning to identify physical signs of sickling episodes. Peyton endured “webbing,” where swelling occurs between her hands and feet—an indicator of active sickling. “We see a hematologist routinely every 2-3 months,” Ivy explained, adding that Peyton takes Hydroxurea daily. The medication has significantly improved Peyton’s condition. Still, the early caregiving challenges were daunting. “When she was little, [the doctors] had me check for an enlarged spleen…you just imagine being a new mom, trying to adjust, and you have this additional weight on your shoulders to make sure your baby is okay.”

A Critical Gap Between Pediatric and Adult SCD Care

Both Teanika and Ivy’s experiences underscore the unpredictable, complex medical impact of SCD, as well as its emotional toll on patients and their families. These personal stories highlight the need for systemic change, especially when patients transition from pediatric to adult care. “In adult care, people are turned away, under-supported for their pain, neglected, and left, wrongly, in an ER setting,” Ivy explained. Teanika’s own journey highlights the same transitional challenges—after pediatric care, patients are often faced with a healthcare system unprepared and lacking the knowledge to meet their needs in fighting this rare disease.

Systemic Barriers and the Fight for Access

To shed more light on these systemic challenges, I spoke with Dr. Kareem Washington, Ph.D., Chief Clinical Operations Officer at Athari BioSciences and an expert in gene therapy. Dr. Washington has spent over 25 years advancing gene therapy and gene editing research, with a focus on inherited blood disorders, like SCD.

Having earned his doctorate in Biochemical Genetics from Howard University, he received specialized training in Molecular and Clinical Hematology at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the National Heart, Lung, and Blood Institute (NHLBI). During his postdoctoral tenure, he played a key role in advancing lentiviral therapy, which is now undergoing clinical trials.

Dr. Washington highlighted many of the challenges in SCD. “Out of all the current gene therapies for inherited disorders, sickle cell is second or third that has been FDA-approved,” he noted. Despite these advancements, access to these therapies remains limited due to cost. “There are very few centers that will administer these gene therapies, so there’s an access barrier, as well as a cost barrier… will health insurance cover these and share some of these costs?”

Beyond access to advanced treatments, Dr. Washington said there is also a lack of medical professionals trained to properly care for SCD patients. “We don’t have enough trained medical professionals in the emergency room and hematology departments to adequately treat sickle cell medical issues, health issues, and social issues.” Limited understanding of the disease can lead to delayed care or improper treatment – an especially dangerous result for SCD patients. “Many patients spend hours in the hospital but only receive 10-15 minutes of proper treatment, said Dr. Washington”. And in some cases, he said, they get the wrong treatment altogether. As a result, SCD patients have less trust in the healthcare system as a whole.

Persistence and Passion for Change and Advocacy

Despite the barriers, the sickle cell community continues to fight for better, equitable care. Across the country, people with SCD and their advocates are working tirelessly to push the disease into the national spotlight – to inspire conversations and effective policy changes. 

Teanika Hoffman emphasized the need for stronger advocacy and community action. “This disease is underfunded, ignored, and forgotten about,” she stated. “In the last two years, we have started to get momentum, but historically, SCD has been ignored.”

Teanika has channeled her passion for advocacy into building her nonprofit, The Sickle Cell Coalition of Maryland. “Our vision is to ensure every Maryland Warrior has access to the tools they need to thrive and have an amazing life.”

Similarly, Ivy Bryant has championed improving the quality of life for children with SCD. She led an initiative within her organization, The Cigna Group, to support 80 African American/Black children with SCD at a summer program called Safe Swimming With Sickle Cell, a collaboration between The Cigna Group, Children’s Healthcare of Atlanta and the YMCA of Metro Atlanta. “We partnered with the YMCA of Metro Atlanta to host swimming lessons that were clinically guided and structured for kids with sickle cell,” Ivy shared, emphasizing the need to create inclusive and safe spaces for children, like her daughter, Peyton.

Giving Hope by Giving Help in the Community

Yes, there is hope for those with sickle cell disease. Advances in gene therapy, new medications, and a deeper understanding of the disease are paving the way for better treatments. Researchers are optimistic about these developments but emphasize they must be complemented by systemic changes in how care is delivered. Dr. Washington, too, is hopeful about the future but stressed that “access is only one arm of the bigger problem.” He emphasized communities need to be more inclusive and open to those with SCD.

Perhaps the most powerful force in the fight against sickle cell disease is the community itself.

The people I spoke with emphasized the importance of connection, of finding strength in shared experiences, and mutual support. “I tell the story within my professional setting and what it’s like being a caretaker,” Ivy said. “When you can rely on the strength of other people…your mind can always be on your child.” Her support network of family and friends allowed her to be the advocate Peyton needed.

Dr. Washington echoed Ivy, “Get involved with these organizations, the parents, the friends, and the entire communities.”

“It is a disease for the strongest of the strong,” said Teanika. Those living with SCD are more than their diagnosis; they are fighters, or as they call themselves, “warriors.”

The story of sickle cell disease is about pain and struggle, but it is also one of resilience, courage, and hope. If we listen to the voices of the warriors and address the inequities they face, we can create a world where SCD no longer defines a person, but instead is transformed to a disease that can be conquered.

New Website and Visual Identity Unveiled: Advancing Healthcare Accessibility Via Research. Training. Outreach.

At Athari BioSciences, we are thrilled to announce the launch of our newly redesigned website, a pivotal milestone in our journey to revolutionize healthcare through innovation, inclusivity, and excellence. This new digital platform not only represents a fresh visual identity but also embodies our core mission: to make healthcare more accessible and engaging for all.

The Vision Behind the Redesign

Digital accessibility is a business imperative—not just a legal requirement. Our decision to revamp our website was driven by our commitment to serving our diverse community better. Whether you are a provider, organization, government agency, or part of an educational system, our new website is tailored to meet your needs. We have designed it to reflect our dedication to transforming healthcare through cutting-edge research, diagnostics, and training, ensuring that our digital presence aligns with our values and aspirations.

A Color Story of Wisdom and Inclusivity

Our new website is adorned with the vibrant colors of purple and teal. These hues were chosen thoughtfully, each carrying a significant meaning:

  • Purple symbolizes wisdom, dignity, and ambition, echoing our relentless pursuit of scientific excellence and knowledge.
  • Teal represents open communication, clarity, and healing, highlighting our unwavering commitment to inclusivity and wellness.

These colors are more than mere aesthetic choices; they encapsulate the essence of Athari BioSciences and our mission to empower and uplift underserved communities through equitable healthcare solutions.

Enhancements That Benefit You

Our redesigned website is more than a visual upgrade; it is a tool crafted with you in mind. Here are some of the key improvements you can expect:

  • Enhanced User Experience: With more intuitive navigation, you can easily find the information and resources you need, making your interaction with us more seamless and efficient.
  • ADA Compliance: Our website is now Americans with Disabilities Act (ADA), 508 compliant, ensuring accessibility for all users, including those with disabilities. This aligns with our goal to support and collaborate with organizations striving to make healthcare equitable for everyone.

Impact on Our Core Lines of Business

The new website will significantly enhance our ability to support our core lines of business, which include research and product development, laboratory services, training and workforce development, and education and outreach. By providing a seamless and accessible platform, we are better equipped to assist companies and organizations on their journey to transforming healthcare. Our commitment to compliance and inclusivity means we can reach and impact even more communities, ensuring that no one is left behind in the pursuit of better health outcomes.

Join Us in This Exciting Journey

We invite you to explore our new website at www.athari.bio. Discover the innovative solutions we offer and learn more about how we can collaborate to address the complex challenges of biotech and health inequity. Your feedback is invaluable to us, and we welcome your thoughts and suggestions to help us continue improving.

Thank you for being a part of our journey. The word “Athari” means “impact” in Swahili, and together, we can create a brighter, healthier future for all.